In addition, it also identifies other factors that influence hope

In addition, it also identifies other factors that influence hope, all

of which had an impact on the effectiveness of the LWHP. Rural Paclitaxel order communities have an increasingly aging population and may be particularly vulnerable in P/EOL care [11]. Research on rural palliative care highlights how rural health services are fragmented, underfunded and lack specialists, and how caregivers are over-extended. Rural communities are also known for their resourcefulness and social cohesion, thus, there are strengths and challenges to rural P/EOL care provision [12,13]. This context emphasizes the vulnerability that these caregivers are experiencing amidst a critical time in Inhibitors,research,lifescience,medical their caregiving trajectory. Experience of caregiving The negative physical, mental, emotional, social

and economic consequences of providing care can be summarized into the term ‘caregiver burden.’ While Inhibitors,research,lifescience,medical most family caregivers want to be able care for their family member, they continue to experience caregiver burden and carry responsibilities beyond what they can handle physically and emotionally; this in turn negatively impacts their health and overall quality of life [14-16]. Caregiver burden can be exacerbated by the multiple roles and responsibilities that family caregivers have, including spouse, parent, and employee [17]. The common negative health outcomes that family caregivers experience include Inhibitors,research,lifescience,medical stress, anxiety, depression, sleep deprivation, fatigue, physical pain and other chronic health conditions [18-20]. Loneliness and fear can also be a part of the family caregiver’s experience, and the fear of the unknown is felt especially as the patient Inhibitors,research,lifescience,medical nears the end of their life [21,22]. Hope is a psychosocial and spiritual resource that has been found to help Inhibitors,research,lifescience,medical family caregivers in managing the challenges of caregiving. Caregiving and hope Understanding the meaning and significance of hope and its relationship to quality of life has been a significant focus of research across disciplines and methodologies,

specifically in literature related to health and illness. The meaning and processes of hope have been studied across a variety of health and illness experiences, including individuals living with a terminal illness [23,24], from caregivers of persons living with chronic illness [3], caregivers of persons living with dementia [25,26], bereaved caregivers [27] and individuals living with HIV/AIDS [28]. As a psychosocial and spiritual resource, hope has been found to help family caregivers live through difficult transitions and challenges of the caregiving experience, and influences their quality of life [29,30]. Hope is related to how individuals behave, feel and think; it has been defined as an inner strength, as possibility for the future, and as a multidimensional, dynamic life force, among other descriptions.

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